I recently went to M.D. Anderson for my 6 month check-up I had another bone marrow + aspiration. I’m doing very well it’s been around 3 years now since I’ve had a full blown anaphylactic attack. (KNOCK KNOCK ON WOOD) I’m still taking the Dasatinib (chemo by pill) still having some of the side effects from chemo but honestly I have no problem trading these for my old side effects of shocking every day. I’m currently only taking the Dasatinib, Zantac and Xanax, I’m no longer taking prednisone after being on it for 11 years. First thing I noticed after not taking the steroids any longer was my joints in my knees, fingers and ankles began to hurt, my left ankle swelled up considerably so I went to the doctor and he placed me on a steroid 4 pack. I finished the 4 pack and it’s been about a month since I took those. I’m doing great, I had a couple near misses because I ate something that had preservatives, I honestly feel like if I had not been on the Dasatinib I would have gone into another full blown attack. I don’t want to mislead anyone I still have minor attacks from time to time I still get the occasional cramping along with diarrhea.
I started riding again after 20 years, my wife and I have a bright yellow GoldWing. We are planning on riding with our local Gold Wing chapter to Oklahoma in July. I’ve already put around 10,000 miles on the bike since August. I refuse to sit home and just wither away.
Here is a recent photo of my lovely wife and I at a wedding reception we recently Dj'ed.
I wanted to share the happy photo's for a reason, even though at times you don't think you can continue living with this crazy illness you must!
Don’t give up on life, I promise you even after everything I’ve been through over the past 12 years I wouldn’t change a thing. I have 3 beautiful girls, an AWESOME wife and a very good life. If it was not for them I don’t think I could have made it. Patty and I have been together for 5 years, I never dreamed I would find anyone who would marry someone as sick as I was. I left a very bad marriage to a person who did not love me and honestly cared very little about whether I lived or died. I contribute allot of my not being as sick for the first time in all these years to the fact that I’m so happy with my life. Happiness, Laughter and allot of Love really can make a HUGE difference in your health. Do whatever you have to do to be happy.
I was about to give up on my blog until I noticed people actually seemed to benefit from knowledge of this crazy illness we suffer. I’ll be sharing more in the near future, thanks for reading.
God bless you,