I was inspired today by a couple of fellow survivors who live with Mastocytosis, I ran across their blog on The Mastocytosis Society website. I thought to myself you know this could be very helpful to people like us. I decided to start my own blog sharing with anyone who felt my ramblings worthy of reading.
I can remember back when I had my first anaphylactic attack brought on my Systemic Mastocytosis. I was driving to work one morning when I started feeling very nervous. I looked into my rear view mirror and noticed my entire face, neck and arms had turned beat red. Talk about scaring the living crap out of me, I floored my accelerator and begin my 5 or so mile race to the hospital. After my 2 week stay and being treated like a lab rat I was released with no diagnoses.
I could share hundreds of stories over the past 11 years but that would take me weeks to write. I will say this The Mastocytosis Society and the people who founded that site saved my life literally. I have a great deal of respect and love for these people, there is NO place with more information regarding Mastocytosis.
I will be discussing my study with Dr. Srdan Verstovsek, MD, PhD at M.D. Anderson in my upcoming blogs.
I look forward to hearing from you so please leave a comment.