When I first started this blog I felt kind of silly posting about my illness and problems. I was like who cares about my problems, who in the world is going to actually read this stuff? To my surprise I’ve had the pleasure of talking to half a dozen wonderful people regarding Masto, not only are they awesome people and I feel better for knowing them it’s made myself worth shoot through the roof to feel like I’m actually helping people. I find that a lot of you are facing the same problems I faced early on with this disease. You have no clue in the beginning as to what is happening you just know this is not in your head like so many Doctors, Family and even friends may try to make you think. They’ll say things like you look fine to me stop being lazy, they may say things like it’s all in your head go see a shrink, I’ve had one Doctor recommend I read this book to name just a few.
I’ve been feeling really well for about 3 years now since I started the Dasatinib (chemo in a pill form those that do not know) a study Dr. Verstovsek allowed me to take part in. Now don’t get the wrong impression I still have some problems. Recently I’ve had about 3 near misses where I was concerned I may go into anaphylactic shock. I’ve been battling with what appears to be gout, it’s the ball of my foot around my big toe and boy is it painful. I went in for it about two weeks ago and they put me on steroids masto patients best friend, even after taking all the pills it began to get worse, sharp pain along with lots of swelling, I could hardly walk on my right foot. After coming home Sunday from deer hunting, I went back to see my Doctor she needed to deaden the area and then poke a large needle kind of like how they drain a knee of fluid. Let me tell you something call me a wuss that was some serious pain. She drained a very large amount and I should get the results tomorrow. I let out a holler that the entire clinic took notice. I was stung in three different areas by some unknown insect that left me itching like a mad man, that all seems to be clearing up now.
I hope everyone is doing well I apologize for not writing something sooner I’ve just been very busy with going to court, taking my girls to volleyball practice, out of town games and now Basketball has begun along with the rest of deer season. You women like to shop and we country boys love to hunt.
I would love to hear from everyone just to see how you are all doing.